Monday, June 27, 2011

sofie update

After a very long day, Sofie seems to be doing well.  After no sleep at all last night, she's been mostly asleep all day, when not being pricked.  After not eating well for about 24 hours, she's finally eating better again, and I'm hoping and praying that tonight we'll both get some sleep.

Two night ago, after several hours of inconsolable screaming, she projectile vomited what seemed like a gallon of fluids...she just couldn't stop vomiting.  After losing all possible liquids, she seemed a bit better, but we talked to a pediatrician first thing in the morning (a wonderful man we met in Haiti and who has a practice in New Jersey), who gave us specific warning signs to be watching for.  She did well at church on Sunday, but seemed to be uncomfortable again throughout the afternoon and by late afternoon and evening was in agony again, screaming uncontrollably and unable to be calmed.  With no interest in eating, throughout the night she was writhing, gasping and choking, and nothing we tried or did seemed to help.

We called our friend again at 7 am, and he asked us to come in.  We drove over an hour to his practice, he checked things out and was concerned by her symptoms and the large list of things that could possibly be wrong...sent us to the ER for  some internal checks...ultrasound, xray, bloodwork.

These things took all day, and praise the Lord, while none of her tests seem to be coming back "100% clear", none of them have come back showing any major blockages, or intestinal or major bowel issues, all things they had been concerned about.  As awful as she has been feeling, she still has no fever, which has been a good sign.

They are keeping her overnight to monitor her due to the fact that the past two nights have been so rough, and then in the morning, she has a few heart tests to undergo.  If these look good, and if she looks good throughout the night, we should be good to go.

THANK YOU...Barb and Keith kept Lily ALL day, Pastor Doug spent most of the day with us and brought us a killer dinner, Uncle Don and Aunt Brenda brought toys and books for Lil and the encouragement of friends, and all of you for your prayers.

By today, after such busy days and such sleepless nights, I am just T-I-R-E-D.  I've had lots of quiet, tired and emotional time with the Lord today waiting for this test or that result, and man, at the end of one of the scariest days of my life, I just feel so grateful.  Isn't it wild, how time with Him can completely change our perspectives?

I'm so grateful He has given me these girls to love and raise and give Him to, even if JUST for today.  I'm so thankful that they are HIS, and not mine, and that HE is in control, not me.  Man, I'm not strong enough or good enough to be in control!  I'm so grateful that He has exquisitely orchestrated so many things in our lives that this morning at 7 am, we had someone, someone wonderful and talented and loving, to call and to help us.  I'm so grateful for Lily, who after a baffling day without mom or dad, came in the room, gave me a huge kiss, and randomly said, "I missed you today, little momma" and upon leaving, gave Sof a big kiss and said, "I love you, too, Sofie" as if Sofie had just told her that she loved her.

I'm so grateful that because of Him I have NOTHING to fear, that even in the panic and heartbreak of the day, that in the base stillness of my heart, I have had complete confidence that no matter WHAT happened, it would be OK, because He is Faithful.  Because He's not going anywhere.

Keep on praying for us, if you will, and we'll let you know how things go tomorrow...

3 comments:

Leslie said...

Praying to the One who knit her together.

Amber said...

Praying for you and Matt to have His strength, Lily to continue to to be content and joyful when your away,and for Little Sofie to be well!! We love you!

Sue Smith said...

Praying for your beautiful lilttle one to be well. Thanking Him for the way He has provided medical care, comfort, Lily's contentment and needs met.